The List – The Chronology of Cancer Chaos

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As I delve into the blogosphere and start to read other blogs, I’ve seen that many bloggers list their treatment history.  It was frankly something I had never thought of, but I really think its great!

So, as best as I can, here is “The List” – the chronology of my cancer chaos:

January – April 2014

Episodes of sensations in my left leg began – My left foot would essentially become numb with electrical-type sensations traveling all the way up my leg.  Several episodes, in which the sensations traveled all the way up my left side into my face (Later learned these were seizures).

Thursday, April 3rd – appointment with primary care physician – brain MRI and blood tests ordered

Saturday, April 5th – blood tests, but no results;  MRI yet to be scheduled – insurance holdups, of course.

Sunday, April 6th – “Big daddy” grandmal seizure

**Can’t recall the initial consult with my neurosurgeon, but it was around April 10th and later followed by a torturous 2-hour+ functional MRI (A particular scan, which required me to repeat words, move various parts of my body, etc.)**

April 17th – 20th

Initial craniotomy with complete resection of tumor with 3-day admission in the hospital.  Discharged April 20th; Diagnosis of Grade III anaplastic ependymoma

May 27 – July 7th – 30 doses of radiation

April 2014 – January 2015

Eight months of physical therapy for neurological deficits on my left side; Spinal tap (Awful!!!); All clear scans

During this time, life eventually seemed to normalize; Returned to work part-time in September 2014; Began to exercise 4-5 times a week and focused on a healthy diet; Became physically stronger than I had been before cancer

February 2015 – Brain MRI began to show “something” – suspected recurrence

February – June 2015

Follow-up MRIs continued to show the same image; Second spinal tap; By June, the image/lesion had grown and recurrence considered “confirmed” (needed official confirmation with pathology report) and second craniotomy scheduled

June 30th – July 3rd

Second craniotomy with complete resection of tumor with 3-day admission in the hospital.  Discharged July 3rd; Confirmed diagnosis of recurrence of Grade III anaplastic ependymoma

July – September – 5 Avastin infusions

August 4th – 10th – 5 high-dose radiation treatments

December 2nd – December 3rd

Seen by physician assistant for pain and redness at surgical/radiation site; Admitted overnight for potential infection; MRI and blood work showed no signs of infection

As an aside, I had a noon flight on December 3rd to Colorado – I told every person I encountered that I was making that flight!  I was discharged at 9:00 a.m., literally rushed out of the hospital and made it to the airport with time to spare, but with my hospital band still on!

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December 28th – December 30th

Reported to UCC for 5-day migraine; admitted for monitoring of symptoms and medication control; MRI and blood work showed no signs of any issue; Resident tried to push a spinal tap, which I outright refused and which my oncologist agreed was unnecessary (Always have to be your own advocate!)

January – March 2016

Mild sensations begin again in left leg; memory appears to be getting worse; referred to Occupational Therapy (OT) and formal cognitive revaluation

March 31, 2016 – Brain MRI shows “something” – undetermined if the image is radiation necrosis or a 2nd recurrence (apparently the image is more diffuse, as opposed to nodular like a tumor); put on steroids

April 2016 – Begin OT for cognitive issues

May 2nd – May 5th

Following pictures I sent to my oncologist and neurosurgeon of my surgical/radiation area, I was directed to report to UCC for immediate admission for a suspected infection and wound breakdown; Titanium plate was actually exposed

Surgery ordered; Infectious disease called in to evaluate; Plastic surgery called in to partner with neurosurgery team during surgery to clear out infection and create skin flap

MRI showed no change from March 31st scan

Steroid taper was completed, unknown to my neurosurgeon

Discharged May 5th to complete pre-surgical testing and for a night at home to “rest” before surgery scheduled for May 6th

May 5th (Happy Cinco de Mayo!!!) – “Big Mamma” seizure in the middle of the night and return to UCC  ** Believed that the failure to advise my surgeon of the steroid taper contributed to the seizure**

May 6th12-hour surgery to clear infection in the brain, remove titanium plate, excise portion of my abdomen to create a large skin flap to cover area of infection and all of the insane intricacies of finding, moving around and reconnecting blood vessels, arteries, etc. (These doctors are geniuses and I cannot even begin to understand all they did)

May 6th – May 13th

Hospital stay including post-op observation, neuro-observation and standard admission

Multiple, daily doppler ultrasound testing of skin flap to ensure active blood flow and function of the arteries (or, making sure this complex system of the flap, blood vessels, arteries, etc. were working and my body wasn’t rejecting it)

Mutliple, daily arguments over my medications (too annoying and tedious to list) and a complete lack of commincation from the “neuro team” (this nebulous group of residents/fellows/ghosts), who were making major decisions about my in-patient care with NO consult with my treating doctors)

PT and OT evaluations and sessions – out-patients sessions ordered

Discharged Friday, the 13th – Yes, that’s right

TO BE CONTINUED….

                                                                                                                                                                            

Throughout these past two years, my treatment and care have involved scans, medicine administration, etc., but also other practices over various courses of time.  These all include:

  • Regular follow-ups with oncologist and seizure neurologist
  • Regular follow-up MRIs varying from every 6 weeks, to every 3 months, to every 6 weeks again, and so on
  • Therapy with psychologist as well as consults with a psychiatrist for anti-anxiety medication maintenance
  • Couples therapy with psychologist and social worker (This was a God-send!)
  • Cognitive therapy evaluations for multiple issues, including memory loss, inability to focus and multitask, etc.
  • Massage and acupuncture sessions
  • Exercise and fitness to keep my body healthy, strong and to relieve stress
  • Meditation (or as best as I can do it)

I’m sure I’m missing some, but thankfully, I’ve got a LOT of time to update things here.

 

 

 

 

Having a Seizure

I could probably come up with a more witty, more descriptive title for this post, but the experience of having a seizure is too horrifying to encapsulate in just a word or two.

I’ve now suffered two seizures in my life, just about two years apart from one another.  I’ve had some intermittent “seizure-like episodes”, which frankly would be classified as  seizures, but for me they aren’t even in the same realm as the other two seizures.

The first was a grand mal/generalized tonic-clonic seizure – the dramatic type that people generally associate with the term “seizure.”  I remember it starting, but obviously, I had no idea what was happening.

I had been having some strange sensations on my left side, almost like a feeling of electrical pulses or currents creeping up from my foot into my leg.  On one or two occasions, that feeling traveled all the way up my left side into my face.  Of course, I later learned that these were in fact seizures.  However, I thought I was perfectly healthy, in tip-top shape.  I never imagined in my wildest dreams that these episodes were seizures, let alone the first signs of brain cancer.

As for the grand mal “big daddy” seizure, it began with that same creeping feeling beginning in my left foot.  It started traveling up my side and very suddenly, my chest became extremely tight.  There was almost this warming feeling/rush too.  It’s a sensation I find hard to describe, but it’s what they call the “aura” before the seizure.  Although I could technically still breathe, I began clutching my chest.  At the time, I was wearing a baseball cap and lifted it up thinking maybe that would help give me some air.  It was at that exact moment I demanded 911.

Just after that, I lost the ability to speak and all control of my left leg.  I actually recall thinking to myself, “Why is my leg jerking like this?  I’m not telling it to do this.”  Almost like an out-of-body experience, I was looking down at myself and seeing this happening, but having absolutely no idea what was happening.  While I don’t remember the specific chronology, around the same time my left arm and head began violently jerking.  It was then that I lost total consciousness.

Apparently while I was unconscious, but the seizure still continued, my contacts popped out of my eyes.  The portion that happened while I was awake was violent enough.  I still cannot fathom what it must have been like at its peak (I guess if that’s the right term to even use).

I was taken to the E.R. by ambulance.  Looking up at the ceiling and the florescent hospital lights flashing by while I was being wheeled into the E.R., I remember the EMTs asking me my name.  I didn’t know it.  They asked me if I could tell them where I was.  I couldn’t.  All I could utter was, “I don’t know” over and over again.  Even though I can only recall a very brief portion of that time, one thought that still haunts me to this day was the feeling that this was the end.  I was going to die.

After being seen in the E.R., I learned that there was a lesion on my brain, which had caused the seizure.  Obviously, after several more tests and ultimately brain surgery, it was confirmed that I had cancer.  The strange thing though is that the seizure scared me more than cancer and I believe it has left me with so much more PTSD.

Following the surgery, did I worry the tumor would recur?  Of course.  However, if that did happen, I believed it would be a progression that I could sort through/deal with/face over a period of time.  Yet, I would never know when a seizure could happen.  I had no control over where I would be, who I was with, what I was doing, etc.  There was nothing I could do to ever prepare myself.  Sure, I took several seizure medications, but there was always that chance.  Also, for quite a long time, I believed every little sensation was the beginning of another seizure.  I truly lived in fear.

As with most things in life, as time went by, things got better.  I didn’t worry every time I left the house about what could happen if a seizure came on.  I worked out without the fear of collapsing.  My doctors cleared me to drive, although I never traveled more than a few miles on my own.  I even began feeling comfortable on the subway again, which had constantly frightened me.  (Being enclosed in an underground subway car, filled with people who aren’t 100% likely to rush to your aide, without any easy access to medical attention, was the cause of many anxiety filled days).

Ironically, just a few weeks ago I thought back on that intense, overwhelming fear of a seizure and truly relished in the fact that I had almost entirely overcome it.  And then…

As I sit here today, I am not even two weeks out from the second major seizure of my life.  So much of the fear has once again reared its ugly head, and now there’s more.

I don’t know which of the two seizures were more frightening, but as of now, the second one is winning.  If the first was “big daddy” this one was “big momma” and we all know, momma is usually scarier than daddy.

Without fully detailing the chaos that surrounded the second seizure, I had been tapering off steroids in the weeks prior due to some vague blur on my last MRI.  (It’s believed that the taper contributed to my second seizure, as no one had thought to inform  my neurosurgeon of the taper and he would have never reduced the steroid had he known, but… anyway).  During that time, all of the radiation treatments had caused my cells to die, breaking down the skin around my surgical site, and causing a major infection.  It’s never fun to see your titanium plate exposed!  So, after days in the hospital, I was finally scheduled for surgery on a Friday.  In an effort to let me rest, sleep in my own bed and prepare for at least another week or two in the hospital, I was sent home Thursday.

I went to bed Thursday evening having to mentally and emotionally prepare for my third brain surgery.  As if that wasn’t enough… I woke up at some point in the middle of the night, violently sitting up.  There wasn’t a second thought in my mind.  This was a seizure.  I don’t even think my body and mind had time to experience the “aura.”  I just knew immediately what was happening.

As I sat up, I yelled at my husband to wake up, screaming, “I’m having a seizure.  Call 911.  Get my Ativan!”  The poor man was barely conscious and yet I was in desperate need of help.  The seizure didn’t begin too intensely even though I realized what was happening.  I was even able to continue yelling at my husband to follow my orders!

The twitching began in my left leg exactly as last time and started to creep up my left side into my left arm and hand.  However, the spasms weren’t bad enough yet because I was able to actually open my pill box and take some Ativan.  Almost immediately after that though, it became very ugly.

My entire left side began to violently twitch and jerk.  My left hand became clawed and my toes were curled under.  My speech became extremely strained until I lost it completely, as I began to literally snort and drool.  I was able to use my right hand to steady myself against the bed, at least keeping me safe from falling off.

I think one of the strangest sensations during the whole experience was that I remained completely conscious, knowing exactly what was happening and worse, what could happen.  My doctor had always told me that if I ever had another seizure, I would have to do my very best to stay calm.  I never thought that would ever be possible, but this time, I did say to myself that I needed to breathe and hope that this would pass.  Frankly, my attempt at staying calm utterly disappeared at the moment I could only communicate by snorting.

And just as it had started, the jerking and twitching began to slowly subside.  I could talk again, thankfully.  However, my entire left side was basically dead.  I sat there trying to move my left leg.  Nothing.  I tried lifting my left arm.  Nothing.  I picked up my arm with my right hand, but it just flopped onto the bed like a dead fish.  My fingers also remained clawed.  I was completely convinced I was paralyzed and a hundred scenarios rushed into my head, while I imagined all the things I’d never be able to do again.

Once the EMTs arrived, I was able to communicate fully, but the sensation on my left side had yet to return.  After a few minutes of oxygen, I began to feel what I thought was another aura, but thankfully, it was actually the sensations in my extremities coming back.  Slowly, I was able to move my leg and my arm, although they were clearly weak.  I was also able to move my fingers around and no longer felt like a clawed lobster woman.  Enough time had passed that it didn’t seem likely another seizure would come on.  So it was back to my hospital, hours early for my third brain surgery with the added bonus of a sudden seizure.

It’s now almost two weeks later and once again, my 12-hour surgery is not what keeps me up at night – it’s the fear of another seizure.  I hope and pray that the feelings that consumed me after the first seizure subside again after this experience.  Unfortunately, it’s going to take some serious therapy, meds and strength of mind to get back to where I was just weeks ago.

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Quotes on Wanderlust

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Through just a simple Google search for “wanderlust quotes” I found so many pieces that capture my intense desire to discover the world, its people, its beauty and so on.

These quotes aren’t in any particular order, although some certainly speak to me more than others.

“We travel not to escape life, but for life not to escape us.” ― Unknown

“Once a year, go someplace you’ve never been before.” ― Dalai Lama

“We travel, initially, to lose ourselves; and we travel, next to find ourselves. We travel to open our hearts and eyes and learn more about the world than our newspapers will accommodate. We travel to bring what little we can, in our ignorance and knowledge, to those parts of the globe whose riches are differently dispersed. And we travel, in essence, to become young fools again- to slow time down and get taken in, and fall in love once more.” ― Pico Iyer

“Perhaps travel cannot prevent bigotry, but, by demonstrating that all peoples cry, laugh, eat, worry, and die, it can introduce the idea that if we try and understand each other, we may even become friends.” ― Maya Angelou

“The real voyage of discovery consists not in seeking new landscapes, but in having new eyes.” Marcel Proust

“because he had no place he could stay in without getting tired of it and because there was nowhere to go but everywhere, keep rolling under the stars…” ― Jack Kerouac

“I travel not to go anywhere, but to go. I travel for travel’s sake. The great affair is to move.” Robert Louis Stevenson

 

 

“I Can’t Sit Still”

Wanderlust

a strong desire to travel

a strong longing for or impulse toward wandering

The concept of “wanderlust” truly only entered my world following my diagnosis.  Did I always have a “strong desire to travel”?  Of course.  However, I was that typical person who dreamed of traveling to far-off, exotic places, but who made excuse after excuse not to.  I never had enough time or enough money.  I worried about what my boss would say if I asked to take two weeks off to see the beauty of Southeast Asia.  I didn’t think I could ever travel alone and so, I would have to rely on someone else to join me on such a trip.  Then, they probably didn’t have the money or the time either. That itch to see the world was always there.  I just couldn’t bring myself to scratch it!

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Then, cancer happened.  Almost immediately, in the face of a very serious and scary diagnosis, I wanted to just get away and escape – the further the better.  I no longer cared about the money.  Maybe that was a little immature and careless on my part, but again, I just didn’t care.  I had a credit card or two.  I’d worry about paying it off later.

I don’t like to think about it, but I was so frightened that I would soon look back on my life and realize all of the things I had missed.  One of my biggest fears was that I hadn’t seen the world or visited places I had always wanted to see all because I had made excuses like, “I just don’t have the time.”  Hah.  It’s darkly humorous that when I had all the time in the world, I constantly complained about not having enough it…

While in treatment and not working for the first time since I was a college student, I had LOTS of time on my hands.  So, I began to think of all the places I wanted to see and things I just needed to do.  Some of them weren’t grand.  I wanted to visit Austin, Texas.  I wanted to make it to a cousin’s wedding in Ireland.  I needed to just sit on the beach or lay out by a pool.  There were the bucket-list items too.  I had to go back to Southeast Asia.  I had fallen in love with Thailand and I needed to see so much more.  I dreamed of cage-diving with great whites.  I wanted to go on a safari.  I had the whole idea of an Eat, Pray, Love journey (minus the love part, since I already had an amazing, loving husband).  Bottom-line: I needed any kind of escape away from this horrid world of cancer.

I hear about this need to travel pretty often from survivors.  The overwhelming fear that your life could end much too soon before you truly had a chance to fully live it will drive just about anyone to seriously reflect on what they hadn’t yet done/seen.

So, I began planning.  I stalked airline websites for cheap flights…  although, I did book a flight in first class to spend New Year’s Eve at my family’s place in the Caribbean.  I was going to ring the new year in with style!  I made it to that wedding in Ireland, much to my family’s shock and awe.  I spent the summer at the beach and at my friend’s pool almost every weekend.  I bought Groupon deals for hotels without a second glance.  Click click!

As I made these plans and ultimately did the things I had set my mind to do (within reason, of course), I found that the feeling of wanderlust just got stronger.  I needed to have something constantly planned, no matter how big or small.  I needed something to look forward to – to have something I refused to miss out on because of cancer.  My diagnosis was not going to stop me and those prior excuses were out the window.

Many of my friends and family were surprised that I could physically do so much traveling.  Yet, every time someone questioned it, my only answer was, “I can’t sit still.”  It was the easiest way to describe in a nutshell the intense fear and anxiety that my life would end too soon, and the overwhelming desire to wander and explore the world.

I have dedicated an entire category of this blog to Wanderlust.  It’s such an intense part of my life now, I couldn’t fit it all into one post.  So, I will just have to sit still long enough, between my travels near and far, to continue writing about discovering the world.

 

 

 

Being an “Inspiration”

Inspiring-others

I’ve had countless conversations with fellow survivors on the topic of whether we are an “inspiration” to others through our fight against cancer. Some survivors embrace it, myself included. However, some are almost offended by the notion. (Disclaimer: I don’t believe either side is right or wrong. I always preface any discussion of someone’s feelings towards cancer as extremely personal, which can never be judged as right or wrong).

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The idea of being an inspiration is something I find myself thinking about constantly. For those survivors who do not see themselves as an inspiration, the most common reaction I’ve heard is that she/he believes that they just simply showed up for treatment and did what anyone else in their shoes would’ve done.

 

One particular conversation that stands out was during my First Descents trip. I sat with one of my fellow amazing survivors, overlooking the Rogue River during our lunch break. It was so peaceful. We were relaxing back in Adirondack chairs, sun on our faces, watching the breathtaking flow of the river beside us. I’m not even sure how the topic came up really. Nevertheless, my friend (I’ll call her C. for short), who had been struck by cancer at a young age, began to tell me her opinions on the subject. Like many others, she did not believe that she was any kind of inspiration. In fact, she gave a good eyeroll about the whole thing. She thought that she had simply done what the doctors told her and that was it.

 

In reply, I shared with her my opinion. She was an inspiration. She faced an incredibly traumatic diagnosis, a particularly rare form of cancer especially given her age and her medical history. Yes, she did what her doctors told her, but she did it. Some can’t even face that decision (ex. I’ve met a few patients who refused further treatment). Then, she took her experiences and wrote her own blog. First Descents wasn’t even her first trip with an organization that challenged survivors through whitewater kayaking. Just months prior, she had been kayaking in Colorado with another organization, which she then began volunteering with. She was always smiling and joking. C. just emanated an air of happiness. So, even if to no one else, she was an inspiration to me.

 

As our trip came to a close, during our last group talk, C. told us all that her opinion on the idea of being an inspiration had completely changed. She now embraced the idea, not just in relation to herself and her fight, but in relation to all of us on that trip.

 

Another incredible survivor I met through First Descents felt very similar to C. about his experience with cancer. Again, he felt that he had just gone through the motions of treatment and that was that. Mind you, he suffered three bouts of cancer beginning when he was just nineteen-years-old, resulting in a stem cell transplant and multiple surgeries to remove several body parts affected by the cancer. I can undoubtedly say that he was not just my inspiration, but a resounding inspiration to each and every one of us. He had been through so much, yet he was one of the funniest, kindest, gentlest men I ever had the privilege to meet. To say he was a true gentleman is a huge understatement.

 

In talking with him, I told him that he was indeed an inspiration. In thinking that he wasn’t, I felt that it diminished all that he had suffered and his tireless fight to continue to be so strong. I’m honestly not sure how he felt about my opinion. We didn’t much talk about it further. I certainly didn’t intend to change his feelings on the subject. Again, whatever he felt is his own and there is no judgment towards those feelings. However, I did want him to know how I viewed him and his life, his challenges and his resounding resilience in the face of so much.

 

As for me, yes, I do see myself as an inspiration. Actually, as I sit here today writing this post, I’ve received two emails telling me how inspiring and moving my story is – one person saying it brought them to tears. I am truly honored when someone says that I have inspired them. If you think about it, people consider having cancer as one of the worst things that could ever happen. To see someone fight so hard in the face of such an overwhelming disease does demonstrate the power and resilience of the human spirit. And this is not to say that those we have lost did not fight hard enough, or gave up in any way. The idea that we are an inspiration simply means that someone can look at us, take what we have been through and honor our fight.

 

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The Rope

The Rope Exercise.

During my “Healing With Words” group (for more details about this fantastic program, see my post Helpful Resources and Information I Wish I Had When First Diagnosed), we were asked to contemplate a rope.  Most simply, what is a rope?  What does a rope do?  What are the qualities or characteristics of a rope?  Then, in thinking about those ideas, we were asked to compare ourselves to that rope and specifically, how the concept of a rope applied to our cancer experience.

Although I wrote this piece more than one-year ago, I am amazed by how it still rings so true.

            Others rely on me to be their strength. I hear others comment how strong I am and have been. They cannot believe how I have kept it together through everything, while remaining so tough. They comment how they could never be so strong. They would have just given up and fallen apart. Yet, what else am I to do? I am a rope. I have no other choice, but to be strong.

Was I built this strong? Have I become like this over time, as each new experience and challenge adds one more layer, another strand, making me stronger and stronger? Maybe I have always had this incredible strength, but never knew it until I faced my breaking point, until I was just about to snap?

Time and time again, no matter what I face, I continue to hold on, never letting go. I refuse to break. Yet, I am still afraid I will one-day fall apart, that I will snap. I worry I will lose my strength, and that I won’t be able to hold on any longer.   Even worse, I fear that slowly and painfully my strands will completely unravel and that I will be gone. I am haunted by the thought that I will watch myself unravel that way, and yet, will have no control or ability to make myself strong again. I do not want to just rot away, left alone and forgotten, realizing that I completely lost that strength, which had once so impressed and inspired others.

I suppose in the end, one day every rope will become too worn, lose its might, or just snap. We were not built to last forever anyway. For now, I will just appreciate the strength I have everyday. I will cherish all the other ropes, which are here by my side, adding to my strength. I will continue to serve my purpose in aiding others, who may not be so strong and need my power to help them achieve their goals. That is all I can do. After all, I am just a rope.

 

Pain Is Real, But So Is Hope

 

“Hope is being able to see that there is light despite all of the darkness.”

Desmond Tutu.

In the darkest moments since my diagnosis, at times it felt like all I had was hope. Perhaps I didn’t always identify it as “hope.” Sometimes, it was faith in God. Other times, it was just a pure, raw will to survive. It also manifested in my thoughts when I looked at my husband and knew I could not leave him. We had way too many years left to live together. Having hope was not always a conscious decision either. There was just simply no other way.

Hope can be defined as “a feeling of expectation and desire for a thing to happen.” It can also be defined as “a feeling of trust.” These simple definitions mean so much within the context of my diagnosis. I hoped that I would survive my surgery, that the surgery would successfully remove the tumor without completely damaging my brain, that the radiation would keep the cancer at bay, and that I would ultimately be one of the success stories. I also put my complete and total trust in my neurosurgeon, my oncologist, my radiation team, and the whole slew of medical professionals working to save my life. I didn’t just hope for these things though. I prayed. I begged God to protect me. I cried to my family that this retched disease would not kill me.

I never made a conscious decision to choose happiness and positivity when first learning my diagnosis. In fact, looking at the situation with such a hopeful attitude was actually contrary to how I typically viewed things in my life. I had always been such a cynical, negative person. Yet, without a second thought, I found myself determined beyond question that I would survive this.

 

There was also no choice, but to be strong and hopeful. One particular situation always comes to mind when thinking about these feelings. After my surgery, as soon as I was cleared to get out of bed, I took my IV stand and started walking laps around the unit. I never thought about it, I just did it. At first, I couldn’t do it on my own. After about a day, I built up my stamina to walk without any assistance. Sure, I was slow and unsteady, but I did it. I had also colored a picture of butterflies and hung it on the IV stand, so that whenever a nurse or another patient saw me, they smiled. On the last day, just before I was released, one of my neurosurgeon’s team members saw me walking the unit. She stopped me and said, “You’re going to be okay, Mrs. K. I know it.”

On the flipside, my roommate in the hospital did not seem to be very hopeful. Looking back, I wish I could have spoken to her and talked about what she was feeling. I was so focused on my survival that I didn’t stop to think about what she was going through. She refused to get out of bed, despite the nurses and doctors urging her every few hours to do so. Every instruction the medical staff gave her, she ignored. I overheard a phone conversation she had, in which she was explaining that she didn’t ask people for help and was frustrated that she needed help.   As I waited for the endless paperwork the day I was released from the hospital, I overheard my rommate’s doctors telling her that she would not be released for quite some time. I find myself thinking about her a lot, and I hope she eventually found her inner strength, her hope.

 

There are times when my strength falters. When something negative happens, I don’t always handle it well. At times, I feel irrationally upset by trivial issues and situations, which don’t deserve my time and valuable energy.  Yet, no matter how upset these minor issues can make me, I always come back to the most important things and what truly matters – that I am still here, living, breathing, thriving and surviving.  And so, I continue to live day-by-day, expecting and trusting that life will continue because really without that hope, what do I have?